Take Our Herpes Survey

Let’s Tell the Real Story of Living with Herpes

Take this 20-30 minute anonymous survey and help create more resources and advocacy that truly reflect our community’s needs. PS - You’ll want to take this from a laptop or computer.

If you’ve ever felt misunderstood or even misrepresented regarding your experience living with herpes, this is your chance to change that. At Something Positive for Positive People, we’re dedicated to reducing stigma and improving support for people navigating herpes. This survey is about more than numbers—it’s about capturing the reality of what living with herpes looks like so we can show public health professionals, therapists, and allies how to better help us and educate the general public more accurately from our experiences.

Key Information About the Survey:

  • Who’s it for? Anyone who has had a physical outbreak or clinical herpes diagnosis.

  • How long does it take? 20-30 minutes, and it needs to be done in one sitting.

  • Is it anonymous? Absolutely. No identifying information is collected, and you can only submit once.

What We’ll Cover in the Survey:

  • How stigma impacts your mental and emotional health.

  • Your experience with physical symptoms, outbreaks, and medication.

  • Navigating relationships and sexual health including discussions around disclosure.

Your experience will help us show the real-life impact of herpes and create better tools, advocacy, and treatment plans.

Why Your Input Matters:

  • Advocacy: We’ll use this data to fight stigma in public health and educate decision-makers.

  • Support: The insights you provide will shape treatment plans and support resources that work for people like us.

  • Representation: We deserve to be seen and understood, and your experience can make that happen.

Your experience matters. By sharing it, you’re helping build a stronger, more supportive community. Together, we can push for real change. Thank you for being part of this work.